Care and Support

Family/ Caregiver Support

Family support for individuals with a rare disease is crucial for both the affected person and their loved ones. Coping with a rare disease can be challenging, emotionally taxing, and physically demanding. Here are some elements of family support that can make a significant difference:

There are three main types of Niemann-Pick disease, each associated with a different enzyme deficiency:

Child Support With Rare Disease

Motivating children with rare diseases can be a unique challenge, given the physical and emotional aspects they may face. Here are some strategies to help children with rare diseases motivated:

In Our Rarity We Find Blessings. United As One Community.